I've been away from the blog (and website in general) for a bit as I've been focused on dealing with flare-ups of some of my chronic health\disability issues. This is something that I've been struggling to figure out how to live with it--having certain disabilities (for example, a chronic illness such as IBD (ulcerative colitis and\or Chron's) necessarily means having healthier times and not sicker times, so how does one maintain a long term project, such as a blog or website? Most writing advice (actually, all the writing advice I've ever come across) consists of truisms such as "write every day" and "you can write every day, you just have to make it a priority." I long for role models who live in a real world punctuated by medical crises!
I've added a new book review to the "books for adults & teens" section of this website. I admit that I am not qualified to comment on most of the advice offered in "Raising Resilient Children with Autism Spectrum Disorders," but I was impressed by the fact that this book not only reiterates advice offered by Temple Grandin, but also quotes Temple directly. It is always cheering to see so-called "experts" being flexible to listen to those of us successfully living with disabilities.
I had one of those moments yesterday that restores one's faith in humanity. A mother came up to the reference desk & asked if we had any books that she could use to explain autism to her first grade daughter. We have a choice of autism materials so I immediately said yes and then tried to pinpoint exactly what the mother was looking for, "Are you looking for a sibling or a classmate or. . ."
Mom's reply was as follows:
Oh, my daughter was doing her Valentines, and I said to her, "You don't have enough here. There are more kids on your class list than this." She said to me, "Oh, I forgot the autism kids," but I don't think she understands what she's saying.
I'm sure the other children in her daughter's class benefitted from this mom's intervention and I'm sure her daughter did as well. She also made my day! So many well-meaning adults feel awkward discussing disabilities--it was great to see a mom who is willing to both tackle a situation head on and to seek out the information she and her daughter need to address things in a sensitive, informed manner.
NJLA is forming a new section focusing on "Diversity and Outreach. You don't have to be disabled to join--it's for any New Jersey librarians who are passionate about diversity and outreach. My lifelong experiences living with disabilities are probably most strongly responsible for why I became involved--and I'd absolutely love for other disabled librarians to join me. I'm finding the range of perspectives to be mind-widening--and I'm betting with more people, the section could be even more inclusive. With or without disabilities, if you are a New Jersey librarian who might be interested, send me an email, and I'll give you more information. No commitment necessary. I'll repeat my gmail here: email@example.com
I'm going to avoid writing about certain aspects of the media attention focused on Derrick Coleman: the fact that "legally deaf" isn't really a thing and that deafness is very often not a disability. Instead, I'm going to focus on Coleman's reintroducing resiliency into the discourse about bullying.
Bullying tends to be a personal matter for adults who have been disabled since childhood because so many of us were bullied. There seems to be something about a disability that attracts bullies. I believe that it is good that bullying is being recognized as a serious problem, but I am growing increasingly concerned that the mainstream discussion is compounding the pain and frustration of children who are victims of bullying.
When I was going up there was far less discourse on bullying and much less acknowledgment of the seriousness of the issue, but what limited discussion did exist tended to stress resilience in the face of bullying. There may have been little attention paid to bullying in the mass media, but much of what did exist came in the form of celebrities, speaking about their youth during interviews. The rich and famous would speak about times they had been bullied during their youth, painting a portrait of bullies as pitiable creatures, living tiny, little lives while their former victims reaped fame and fortune. Fictional stories tended to stress victory of bullying as well, with most films and books on the topic ending in some type of triumph for the bullies' target(s).
These stories impacted bullied children in two important ways. One is that they inspired us to imagine our own future success, viewing being bullied as a temporary situation, one that we could expect to eventually overcome. Given the number of suicides currently being traced back to bullying, this is no small matter. Perhaps even more importantly, celebrity stories were a tool in avoiding internalizing the message that we deserved to be picked on. Victory over bullying means hanging onto a sense of one's inherent value. Back in the day, one never heard about successful bullies, but there were enough stories about stars who had "shown up" bullies with their success. It was often implied that they were bullied by those who were jealous of their raw talent and\or beauty, offering an alternative explanation to the idea that one was being bullied because of an innate inferiority. At the very least, they suggested that being bullied put one in "good company" and offered fodder for daydreams of future success.
There is no doubt that bullies sometimes win. I know sensitive, kind, talented people who have been so badly scarred by bullying that they do not share their gifts beyond a circle of people who are also disabled. While I appreciate the fact they my life is enriched by knowing these individuals, I am saddened by the loss of their gifts to the world at large. I am certain that there are others who feel so diminished by bullying that they share their gifts with no one. It is important that we honor the stories of these individuals still suffering the after effects of childhood bullying, but it is equally important that those of us who have triumphed over bullying share our own stories.
Sharing our stories can inspire and strengthen youth who are currently being bullied, as Derrick Coleman's story doubtless has done. Our stories can also help to shift the current discourse on bullying. The "just ignore" advice so frequently given to bullying targets when I was growing up only compounded our frustration. I am concerned that the current, relentless emphasis on how pervasive and overwhelming bullying is actually intensifies feelings of hopelessness in kids who are already oppressed by terrible situations. Telling kids to "just ignore" the bullies made a bad situation worse, but our current approach may be doing that also. I'd like to see those of us who triumphed over bullying look at our own lives and share strategies that can help ameliorate--or even prevent--bullying. Here I talk about the importance of drawing inspiration from successful adults willing to talk about their childhood experiences of being bullied. Peter Flom talks about a different source of strength, working to develop friendships, on his blog: "I am Learning Disabled." I'd love to hear about others' strategies for resiliency. Here's a link to Peter's: http://www.iamlearningdisabled.com/finding-strength-to-have-strength/
I read a cool article about Knowshon Moreno (of the Denver Broncos) in today's "USA Today." I don't normally read the sports section, but Knowshon and I are from the same hometown, and it's thrilling to see him receiving respect on the national level--respect that citizens of his hometown have always known he deserved. I'm writing about Knowshon, however, for reasons that go beyond hometown pride. Two of the quotes by Knowshon in the article really resonated with me. At one point Knowshon is quoted as saying, "My thing is more just staying healthy and everything will come to you." Later in the article, Knowshon says, "I've always had that in the back of my mind--if I could stay healthy that I could definitely help this team out."
Knowshon is 26 years old and has struggled with injuries during a significant portion of him time with the NFL. Having struggled a good bit with health problems during my late teens and early twenties, I can easily relate to Knowshon's story. It's a very difficult time to struggle with illness or injury--one is eager to rush out and contribute to the world--or at least to be seen as a competent adult. Like Knowshon, I felt I had talents I could share--and I was very frustrated to have to put so much energy and time into managing my health issues. I often felt that if I could just achieve and maintain health, everything else would fall into place. Knowshon and I both persevered and overcame--but I wish I could have had a role model like him when I was 19. I'm pleased and proud to have survived--but it would have been comforting to have a story like Knowshon's to use as a guide. I'm pleased to see it in the national media.
I have started the process of incorporating the "new" 2013 NJ Preschool Teaching & Learning Standards into my library programming. I'm still in the process of studying the latest standards, but I want to share one aspect of the language that has caught my age. When addressing specifics of adapting curriculum and activities for children with disabilities, the standards mention "as is the case with some children with disabilities." The inclusion of the word "some" is significant as often "children with disabilities" are lumped into one group, ignoring the fact that different disabilities require different (and sometimes contradictory) accommodations, in addition to ignoring the very real differences that occur among individuals with the same disability. I am pleased to see such an important document addressing these differences in such a matter of fact way.
Like many librarians and teachers, I'm striving to create recommended reading list that are in line with the new common core emphasis on non-fiction. This means I get to read lots of interesting books--and, occasionally, am able to stumble across a good book or article involving individuals with disabilities. I've just added a review of my most recent find, from the National Geographic Kids Chapters series. The title (Dog Finds Lost Dolphins!) and cover art (a dog, standing at the edge of a pool, gazing at a dolphin--whose head is sticking out of the water and who appears to be looking back at the dog. I love books that include disabilities in a matter of fact way, reinforcing the idea that those of us who are disabled are as much a part of society as any one else.
I was googling yesterday and this website came up on the first page of hits. I'm so excited! I hope that Google leads new readers to this site. Comment below if you are visiting for the first time.
I had a blast planning\coordinating\presenting at the NJLA Youth Services Forum on Thursday, November 14, 2013. The best part was discovering that I had actual readers; that, in fact, some people are even reading what I put on this website. Sometimes I am afraid that I am talking to myself out here in cyberspace. I hope that some new readers find this website via the YSF. If you have, welcome! I hope that who were already landing here during their trips around the world wide web continue to visit and find things of value here. If that's you, welcome back! I also hope that some of these readers will start to participate, by commenting and submitting articles and reviews for the website. See the homepage for submission information.
The content on this website mostly comes from my perspective as a youth services librarian with disabilities. The further I travel along life's road, the more entwined these two parts of my identity become. Librarian: I have an MLS from Rutgers University and have working in public libraries for nearly 20 years. The focus on my career has always been youth services. Disabled: I've been disabled more than twice as long as I've been a librarian. My experience started at birth when I was immediately diagnosed with cleft palate. Also present was a non-verbal learning disability (NLD) for short. This was not formally diagnosed until I was 19, leading to years of frustration. My Tourette Syndrome was not present at birth, but surely started young as I don't ever remember living without it. The Tourette was also not diagnosed until adulthood, further compounding my frustration. Coincidentally, I was also diagnosed with IBD (more commonly known as Chron's\Ulcerative Colitis) at the age of 19. That was another easy diagnosis--as with cleft palate, they look and they see it.