I'm having surgery on Friday--& afterwards I will hopefully be healthier & back to life, in both the virtual and actual worlds. Like many born with clefts, I have battled many, many infections. They are growing increasingly antibiotic resistant and harder for my body to fight. My psychiatrist suggested this procedure as a way to reduce the number of infections that I get and my ENT is performing it as day stay surgery on Friday. I wonder, though, why I was not aware of this procedure earlier. Upon hearing about the procedure, my mother said that she and my father were told that everything that could be done surgically had been done. I believe that was probably true at the time--after all, that was 30 years ago and there have been some advances in the field of medicine since then. This is not a brand new procedure, either, and I'm wondering why no ENT suggested it to me before then. Or was I supposed to somehow know that this procedure had been developed?
The content on this website mostly comes from my perspective as a youth services librarian with disabilities. The further I travel along life's road, the more entwined these two parts of my identity become. Librarian: I have an MLS from Rutgers University and have working in public libraries for nearly 20 years. The focus on my career has always been youth services. Disabled: I've been disabled more than twice as long as I've been a librarian. My experience started at birth when I was immediately diagnosed with cleft palate. Also present was a non-verbal learning disability (NLD) for short. This was not formally diagnosed until I was 19, leading to years of frustration. My Tourette Syndrome was not present at birth, but surely started young as I don't ever remember living without it. The Tourette was also not diagnosed until adulthood, further compounding my frustration. Coincidentally, I was also diagnosed with IBD (more commonly known as Chron's\Ulcerative Colitis) at the age of 19. That was another easy diagnosis--as with cleft palate, they look and they see it.